I have learnt something new about myself today in the most unexpected place. Madison and I had a lovely morning together and then headed out, our destination, Wembley Arena featuring Disney On Ice Princesses & Heroes. Madison was dressed as Rapunzel and looked like a doll, brimming with excitement. As we sat and the lights dimmed, the music came in and out of no where it started. It starts with a burn in my throat and then gradually my skin starts to warm and I sense I have blotches appearing on my neck. My stomach knots and the only way I can describe it is like a hollow feeling takes my body. And then as the spot like appeared and the performers took the ice, a few tears rolled down my cheek. Today I realised there is a distinct pattern to this reaction – it only ever happens at the opening of live Disney performances or during instrumental firework displays. ‘Hormonal softie’ some may think, but today a light has been switched on in my head. It all clicked into place. That feeling, the tears, it is my grief! The grief that will always live inside me but, if anyone had asked before today, I would have said didn’t stir anymore. However, I was wrong it does stir and this is it’s trigger. As I sat and thought about why it made me feel like this I realised they really were tears of grief. It wasn’t tears of joy at the spectacle in front of me or of a happy memory that these performances reminded me of, it is pure grief for the loss of my Sister and Brother.
They have been gone for 20 years now and I miss them terribly, but as you do, I live with it. My life is so very different now and although they still feature in photos in my house and my children know their names, I don’t feel sadness when I look at them or talk about them and I don’t mark their anniversaries anymore. I have spent the rest of my day pondering why these shows cause me to feel so sad and open up the wound. I have decided it can only be because my happiest memories of my Sister, Emma and Brother, Jon were our three family holidays to Florida. Emma and Jon were terminally ill and in and out of hospital their whole lives. The power of Disney is amazing. Each visit we made it was like a vail of darkness was lifted. They were like different children. It didn’t matter how ill they were those trips raised them up! They laughed, they walked, they loved every minute and it was the best family time we shared together, hence the three trips The fourth was booked but they passed away before we made it. It was like we all forgot for those few hours that we were in the parks watching the parades and fireworks. We were in a perfect bubble, where dreams do come true!
Whilst these memories are my happy ones I think being back in the bubble makes it all too real again and reminds me of what I, and they have lost. Rather than just enjoying it, it makes me want to travel back to that time and re-live those perfect moments when we were a normal family of five having the time of our lives. It is, the one, painful reminder that stabs my heart and makes me long for their company once more.


